End of Life Resources

There are countless resources available on End of Life topics.

Consider searching for hospice, end of life or similar terms on any book, video, TED Talk or podcast platform.

The following is Carola Stepper’s selection.

Carola Stepper has these booklets available for sale to her clients

Alternatively clients may use the provided links to purchase these booklets on their own.

  • The Care Plan – A path to comfort for the Hospice Patient by Odonata Care. Simple-to-follow instructions for addressing and alleviating common symptoms and medication management by two experienced Hospice Nurses. Empowers patients and their care circle.$5 digital, hardcopy $7 One complimentary hardcopy is included in all initial home visits. Carola highly recommends their YouTube channel, it offers valuable informational videos on hospice related topics as well as instructional videos for bedside care in the home.

  • “Endnotes: Live well, age well, die well” by peaceful presence end of life doulas. Endnotes is their evidence-based, holistic end of life planning workbook. It describes what you do and don’t want to happen before, during and after your death. ($25 PDF fillable) or Printed booklet $39

  • Barbara Kearns, RN, End of Life Education Materials: A Time to Live: Living with a Life Threatening Illness, Gone From My Sight: The Dying Experience, The Eleventh Hour: A Caring Guideline For the Hours to Minutes Before Death, Pain at End of Life: What You Need to Know About End of Life Comfort and Pain Management, My Friend, I Care: The Grief Experience. $14 for all 5 booklets

  • The Caregiver Helpbook, third edition by Powerful Tools for Caregivers, Iowa State University Ebook, $25, hardcopy $30
Professionals who coordinate care and provide resources when care needs increase
  • Case Workers

  • Community Health Workers (CHWs) in clinics

  • Discharge Planners in hospitals

  • Elder Care Consultants

  • Social Services in Assisted Living and Nursing Homes

  • Social Workers as part of the Home Health and Hospice team


Many of these books are available in audio format as well

  • BJ Miller, MD and Shoshana Berger, A Beginner’s Guide to the End – Practical Advice for Living Life and Facing Death

  • Bronnie Ware, The Top Five Regrets of the Dying – A life Transformed by the Dearly Departing

  • Bruce Greyson, M.D., After – A Doctor Explores What Near-Death Experiences Reveal about Life and Beyond

  • Frank Ostaseski, The Five Invitations – Discovering What Death Can Teach Us About Living Fully

  • Ira Byock, M.D., Dying Well – Peace and Possibilities at the End of Life

  • John W. James and Russell Friedmann, The Grief Recovery Handbook – The Action Program for Moving Beyond Death, Divorce, and Other Losses

  • Phyllis Shacter, Choosing To Die – A Personal Story, Elective Death by Voluntarily Stopping Eating and Drinking (VSED) in the Face of Degenerative Disease

  • Sallie Tisdale, Advice for Future Corpses * And Those Who Love Them – A Practical Perspective on Death and Dying
Videos and Movies
  • Being Mortal “Author and surgeon Atul Gawande explores how doctors care for terminally ill patients, highlighting how many doctors – including Gawande himself – struggle to talk candidly with their dying patients.”

  • Compassion and the true meaning of empathy, TED Talk by Joan Halifax

  • Extremis “Witnessing the wrenching emotions that accompany end-of-life decisions as doctors, patients and families in a hospital ICU face harrowing choices.”

  • Griefwalker, documentary about Stephen Jenkinson, author of Die Wise. “…he has made it his life’s mission to change the way we die – to turn the act of dying from denial and resistance into an essential part of life.”

  • On Our Own Terms: Bill Moyers on Dying 4 part series

  • Ram Dass Going Home “A profound and poetic encounter with cultural and spiritual icon Ram Dass, at his home on Maui toward the end of his life.”

  • Surviving Death Netflix Docuseries, 6 episodes

  • What really matters at the end of life TED Talk by “BJ Miller, who is an American physician, author, and speaker. He is a practicing hospice and palliative medicine physician.”
Training, classes, certifications
  • Each Hospice has a volunteer program. Contact your local hospice to inquire.

  • End of Life Doula training programs: There are many different programs available. NEDA (National End of Life Doula Alliance) offers a micro credential, the only one available. INELDA (International End of Life Doula Association) offers End of Life Doula as well as Caregiver Support training. Carola took her training with The Peaceful Presence Project.

  • Last Aid Course – “An Education For All Citizens and an Ingredient of Compassionate Communities.”

  • Many caregiver agencies or senior facilities, such as Assisted Living or Nursing Homes offer to train their caregivers. Some offer CNA (Certified Nursing Assistant) training.

  • Zen Caregiving Project– Mindful caregiving education
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